Keeping Patients Informed

At my six week check, the consultant suggested that I could get access to "PatientView". This is an on-line IT system which does what it says - it lets patients view things about themselves, like their results.  My brother Tim has been using it for some time, but I hadn't appreciated that I would be allowed to use it as well.  It used to be called RenalPatientView but is now getting rolled out to include other specializations.  So I filled in the form as suggested and, after a very short wait and an exchange of e-mails, I now have access to this nice little system which allows me to see what their records have about me, from two different hospitals. This will be useful and interesting as I shall be going back for an annual check up for the rest of my life, and it will save me trying to keep track of things like the change in my eGFR.

Knowing that I was to get this access, I did not call to find out my results from Dec 3rd, but waited to see them on-line. The good thing was that my eGFR has gone up to 50, having been 44 a week after the op.  So my remaining kidney is manfully responding to the new demand placed on it.  I shall be following that figure avidly over the coming years; it will of course never again reach the giddy heights of 80 which was the sort of figure I had pre-op, as you can't expect that much of one kidney.  I'm quite happy with anything over 50, and it will be interesting to see where it settles.

In actual fact, this system is potentially so useful that I'm sure everyone will one day have access to something like it. One benefit is that you don't have to telephone for your blood test results - you just check the system a day or two later and there they are. This will save the staff time as well as saving the patient's phone bill. There's obviously a cost but the overall benefit to patients must be considerable, if only to take away that feeling of "there's something they are not telling me"!

A Surprise Gift

I had a small package arrive in the post on Friday. It didn't look like a Christmas present, and it's a bit soon for that anyway.  The padded bag was about A4 size and an inch thick, with an unfamiliar postmark - I don't know anyone in Bristol. Opening it revealed a small box and a letter from the Chief Executive of NHS Blood and Transplant which thanked me for my donation.

This is what the box contained:

It's sterling silver and about 2 cm in diameter.  It's a design by Liz Welch which incorporates a crossed anchor as a symbol of hope and an Ankh to represent zest for life. It also looks to me like one person reaching out to another.

The idea of an award had been puzzling me. In hospital after the operation, the transplant nurse had mentioned something about an award, but this (understandably) was not very high in my priorities at the time so I had (most unusually!) asked no questions.  Subsequently, I had looked on-line for more information and all that I had found was the new Order of St John award (see this link) which seemed to be for the relatives of deceased donors and not living donors (although some websites were not clear on this). Rigorous searching for an award on the NHSBT website revealed nothing relevant and so dismissed the question; however, having received it, I now realise that I should have been searching for "badge" not "award"!

Anyway, it looks good and I shall wear it with pride whenever I am wearing something appropriate to put it on - I'm not sure it looks right on a jersey or rugby shirt!

Six Week Check

I had my six week check this morning - I think that's meant to be six weeks after the operation, but in fact it is now exactly six weeks since the surgeon checked me on the week after the op.  This little slippage is because the surgeon's discharge letter took ages to get to me, and I was waiting for it before booking the appointment. Eventually I gave up and booked it anyway. On Monday last week I chased them for the letter and on Wednesday it arrived, postmarked Monday.  Guess what? On Thursday a copy of the letter arrived, postmarked Tuesday! Sigh.

The check up was done at the Churchill Hospital where I had my initial tests done, and was absolutely fine. I don't have the blood test results yet of course, but I shall now be getting access to the patient view thingy on-line where I will be able to see lots of stuff about me.  

The consultant said that creatinine after the op was 149 which gives eGFR of 44.  In March it was 81.4, so it's on the right side of 50% of what it was. This is what one would expect as my remaining kidney is the larger of the two, and that 44 should increase a bit in time as my own kidney reacts.  So I look forward to today's blood test results (not forgetting that eGFR is really a very rough guide only).

My BP was checked twice today as the first reading was so low; the second was 112/71 which is still very low for me so I'll settle for that.  I'll have bloods done again in six months by my GP and then back to Churchill in a year's time for the annual check. I made a point of seeing the transplant nurse who looked after me last year - it's lovely when even a person who just managed my tests over a year ago looks pleased to see me, and looks even more pleased to discover how well I am post-op. I feel very comfortable with the prospect of being in their care if I ever have any renal issue in the future. I feel that they, like St George's, really do look after kidney donors.