Tuesday 20 November 2012

Still Waiting...

Well, the good news is that Tim's eGFR has risen back to 19%, although I don't know if he actually feels correspondingly better.  The neph says that he is stable enough not to need another review until February (i.e. 3 months) - I think it was every six weeks. As I understand it, short of a literally miraculous recovery, he isn't going to get better because kidneys don't regenerate so this merely delays the inevitable.  The general view is that he could very well stay at this sort of level for a year or two (but perhaps not!). 

I am painfully aware that I'm not getting any younger; I was just turned 60 at the start of this process, and I'll be 61 by his next appointment; several hours babysitting my 23 month old grandson is enough to leave me totally exhausted!   I surprised myself at getting through all the tests first time without difficulty, but I worry that I might just fail a re-test if this goes on too long. That would be pretty annoying for everyone, although at least there are other volunteers in the wings.

Patience never was a strong suit of mine; having made a decision, I'd far rather just get on with it.

4 comments:

  1. agree that waiting can be SO frustrating.. I'm a Dad waiting to donate to my 8 year old son. We've had complications which had led to further delays. Hopefully just 2 months way now.. Good luck with everything!

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  2. I hope you've got there now! I've got the T-shirt (see Oct 21st 2013)

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  3. I wish I'd stumbled upon your blog sooner than today. How informative! I donated a kidney to my husband last month, your blog would have been great to read during my 'work up' I hope you don't mind, I will be sharing this with a Renal group on facebook for potential donors as many have so many questions that I feel you cover here. I hope you and Tim are both well. Happy new year.

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  4. Thanks for your comments. Please share wherever you want - I don't do Facebook! I actually started the blog as I felt there was a lack of donor information on-line, so I'm pleased to help anyone.

    Tim and I are both doing very well - the change in him is so much MORE than I had anticipated, and he really has got his life back.

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